Survey study, 2016
What menstrual health problems do young women with Angelman syndrome experience?
Menstrual and premenstrual symptoms were common but infrequently caused problems at home or school. Girls with AS had significant challenges with menstrual hygiene and needed full assistance managing it.
What they did
Web-based survey of caregivers of young women aged 12-25 years with Angelman syndrome using an institutional review board-approved questionnaire.
What they found
Menstrual and premenstrual symptoms were common but infrequently caused problems at home or school. Less than half used hormones to control flow. Of those who used hormones, 75% used them continuously. Girls with seizures were more likely to use hormonal methods. Almost all girls with AS required full assistance with menstrual hygiene.
What it means for you
For young women with severe neurodevelopmental disabilities, menstruation does not significantly disrupt daily life despite hygiene challenges. The study surveyed caregivers rather than the women themselves, and used convenience sampling, so results may not represent all women with AS.
<50%
Used hormones to control menstrual flow
75%
Of hormone users, percentage using continuously
About the study
- Original title
- The Effect of Menstrual Issues on Young Women with Angelman Syndrome
- Authors
- Kaskowitz AP, Dendrinos M, Murray PJ et al.
- Journal
- Journal of pediatric and adolescent gynecology
- Year
- 2016
- Study design
- Survey study
- What was tested
- None
- Open access
- Yes
- Read the paper
- doi.org/10.1016/j.jpag.2015.12.004
Topics
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