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Survey study, 2005

Do women with intellectual disabilities experience more period pain and PMS?

Women with Down syndrome or autism spectrum disorder reported more period pain than is typical. However, the sample was very small and relied on parent reports, so firm conclusions are difficult.

Early or limited evidence 24 women with Down syndrome or autism spectrum disorder in Australia and New Zealand

What they did

Gave questionnaires to parents of 24 women with Down syndrome or autism spectrum disorder in Australia and New Zealand, asking about period pain and premenstrual symptoms.

What they found

Women with Down syndrome were more able to directly report pain or point to where it hurt compared to women with autism or Asperger syndrome. Women with Down syndrome or autism spectrum disorder appeared to have a higher rate of period pain compared to women in the general population. Pain was often only noticed through behavior changes rather than direct reporting by the woman.

What it means for you

Women with intellectual disabilities, especially autism spectrum disorder, may experience more period pain, but it may be harder to recognize because they don't communicate it the same way. The main limitations are the very small sample (24 women), the study being only in Australia and New Zealand, and relying on parent observations rather than direct reports from the women.

24

Women with intellectual disabilities surveyed

About the study

Original title
Health issues and quality of life in women with intellectual disability
Authors
Kyrkou M
Journal
Journal of intellectual disability research : JIDR
Year
2005
Study design
Survey study
Participants
24
What was tested
None – observational study of health experiences

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